Monday, August 31, 2020

On Our Own and a Serendipity!

I guess you can say we have graduated from dialysis training. This morning the nurse had me do one more exchange...a 1/4 of a dialysis treatment. When it started the nurse handed me some papers to take home and also a test! Well, here is where the serendipity in tonight's title comes in! Last night I had one of those nights, again, where I sleep for several hours and then wake up and my body thinks that it has had a good nap so I can't get back to sleep. This is a good time to read. I decided that I would go looking for more of the PDF manuals from our dialysis company. I have been saving the manuals for those from Fresenius dialysis for his machine as PDF files on my iPad...that way I can easily do a word search when I want to find out something specific. I did find another quick reference for Woody's dialysis so set it up as a PDF file and then read through it. I still wasn't sleepy so decided to make one more search and here is the "serendipity"...I found a test for Fresenius Dialysis Care...with all the correct answers circled. I decided that it was worthy of studying...just in case. I read through the whole test...probably twice. And, guess what...that was the test that I was handed this morning! it was just a happen chance, as I didn't know that I was going to be given a test, and I didn't go looking for a test...it just landed in my lap so to speak! It definitely took the stress off of taking a test! Once Woody's partial partial dialysis treatment was finished we were on our way home. I did have something happen when setting Woody's up this morning that the nurse said had only happened one other time since he had been working there for more than two years. I had him give me a manual drain bag...just in case...he said that it shouldn't be needed but that if it made me feel better..! We have had so many storms blow through here in the last few days that it is definitely a possibility of a power outage...and I didn't want to take any chances! We had another patient line blockage warning today, too. It took three retries to get it back going. I hope that we sleep tonight...but not so soundly that we don't hear alarms on the machine! The nurse came after lunch and got our machine all set up with Woody's info and connected to a modem that will send data directly to the center...guess they can keep an eye on us that way! After he got all that done, he had me get the machine all set up for tonight's exchanges. All I have left to do is connect him to the machine and go through a few more steps, then the machine should take over and not need our attention till morning. We will see if that is possible! Will let you know tomorrow how things go tonight and also how the BIG delivery goes tomorrow! Be safe! Be well! Be cautious! (I hope this blog post makes sense. I went back to look at something and found entire sentences that made no sense...the iPad had substituted the words it wanted me to use! Hope this makes sense. The way this format works, it is very hard to go back to check things...and, if you find a mistake it is hard to correct!)

Saturday, August 29, 2020

Another busy day

I haven't stopped much today. I got up...well, I did sleep in a bit later than usual...just because I could and because I had one of those nights when I slept hard for four hours or so and then woke up and then it was like I had had a good nap and wasn't sleepy enough to go back to sleep...and..."things" started running through my head. I read for a little while, played a couple of games of solitaire on the iPad, then got to thinking about Woody's dialysis and decided that I would read through the manual for the dialysis cycler machine...figured that would put me to sleep. But I read quite a bit of it before finally getting back to sleep around 5am. Woody hadn't eaten breakfast when I got up so I made him pancakes. I got a call from the public library that some books that I had put on hold last night were ready for me to pick up. I arranged a time to get them. I decided that I would include other errands that I needed to run in the library trip. I picked up the books, then made a stop at Joanne's to get one item (first time I had been in there since the before the pandemic). I considered going to Hobby Lobby, as our new Tullahoma store just opened this week, but I decided that it would be less crowded in Joanne's and that I will check out Hobby Lobby at another time. Dollar Tree was next. I had hoped to find antibacterial hand soap in a pump bottle...but they only had refill size and I needed the bottle with the pump. Then it we on to Walmart. It seemed like whatever I looked for either they didn't have or that they had put it in a different place! I found Clorox over on the far wall just as you go into the garden shop...why it would be there I have no idea...I was just glad to find it...and the kind that says that it kills 99.9% of germs. I finally gathered together what I could find and then stood in line quite a while waiting to check out. Since coming home I have hardly sat down...I have been cleaning. Well, I did sit down one time with the plans to call Cheryl (my sister), but found myself waking up a while later...so I did manage to fit in a little nap. Woody got to watch a little of the Cardinals' baseball game today as the featured game had a rain delay. I think that Woody is enjoying a day off from all our comings and goings of the last two weeks. Hopefully those comings and goings will slow down a bit after Monday. We will have to check in periodically at the dialysis center, but not as often as we have been...hopefully no more than once a month. Woody was glad to get the books that I picked up at the library as they were for him and he had completed his last library book last night. He started in reading on one of them right away. Be safe. Be well! Be cautious!

Friday, August 28, 2020

Turning Into a Hospital!

More supplies arrived today...an IV pole, a scale so we can keep accurate records of Woody's weight, a small scale to hang on the IV pole to weigh the drain bag in case we have to do the manual type of dialysis, a blood pressure machine, a wireless modem so they can get statistics wirelessly, a heating pad to warm the solution if we do the dialysis manually. Nathan came over a little while ago and inwhosed him all that we have received thus far. His eyes got rather big when I showed him the boxes that we will supposedly receive 69 of. We got the call this afternoon as to the 4-hour window that they will deliver the rest on Tuesday. I guess that dialysis training went fairly well this morning. When I was putting the "cassette" into the machine, I was sure that it snapped in but as I started to shut the machine's door, the entire cassette (which consists of many loops of tubing and connectors) fell right out and landed on the floor. Anything that hits the floor must be thrown out. But, again, a good reminder to me that I have to throw it away and not use it. There are just so many "little" rules that are major! I will just be glad when we have the first night under our belts...when we have done it by ourselves. I know in my head that it won't be too long into this that it will all come as second nature since we do it every night! We are supposed to talk to the nutritionist Monday morning. It is still overwhelming and I am extremely tired at the moment. It is about time to go change the dressing on the surgery site where the catheter tube was placed. Still working on doing some more cleaning. I put away some more of Woody's clothes in the drawer that I cleaned out the other day. I do believe that Woody is feeling a little better, at least, as far as his nausea is concerned. He is still very weak. The lest effort still wears him out. But we have to realize that he has yet to receive a full dialysis treatment. That first full treatment will happen Monday night and into Tuesday morning...hopefully while he sleeps. Be safe! Be well! Be cautious!

Thursday, August 27, 2020

Busy Day Off

Have you ever seen this style of barn? This is a bank barn. It is built into the bank and accessible from two levels. We also call this our UT Barn as it has an orange "T" on it and around here that equals University of Trnnessee. I read about a bank barn in one of my books a while back so had to look up what the style was and why it was called that. Then low and behold if we didn't stumble upon one on one of our barn photo trips. This is one of those days that I am really tired and have to look back and decide what all in have done. Cooking wise I made sour dough blueberry muffins. Then mid morning I made a recipe that Woody had been wanting—Cantonese Spare Ribs. And, he actually enjoyed them. A lot of times lately when he asks me to make him a certain recipe it doesn't taste as good to him as what he expected it to taste. But this time the recipe came up to his expectations. I also put in a call to Woody's kidney doctor. We need to get him to reevaluate his blood pressure meds—now that he is on dialysis and has also lost a significant amount of weight. The nurse I needed to talk to we on another call so I was told she would call me back...well, I am still waiting for that call! Our deliveries began happening a little after noon...first UPS brought us some of the supplies that we will need prior the BIG shipment next week. We are still lacking some things that we will need. After I blog, I am going to make a list of things that we received today and that we still need prior to doing his first dialysis treatment at home on Monday night. a little after UPS delivered, a FedEx truck pulled u and delivered two rather heavy boxes...not that some of the boxes in the first shipment weren't heavy! The FedEx delivery was the dialysis machine (the cycler) and the rolling cart to put it on. I got the cart put together and the machine on it and then rolled it into the family room. I plugged it in and turned it on for the first time to make sure that it started up (the nurse requested that we do this to make sure that it would come on). And, it did so that task is done! Today we got two boxes of solution (which will be the majority of the BIG order next week). On the bottom shelf in the family room closet I was able to place the boxes side by side and there is room for one more to slide in next to those. There are three strengths of solution. We have to make the decision each night as to what strength he needs! We only got two of the strengths as the higher strength isn't often used. And, at the moment I think that Woody will be using one bag of the lower strength and one bag of the middle strength each night. Each box just has two bags of solution in them...enough for one dialysis session...reason that we have to have so many for a month! I think that all we will be able to get on that bottom shelf is six boxes. And, I don't want to put them on a higher shelf or I won't be able to lift them off! On the shelf above the solution boxes I placed what they call the cartridge...it goes into the cycler machine and has all the connector tubes hanging off of it. We received ten of those today...I will be able to stack a few more on top of the ones that I have on that shelf...but not many more. So the rest will have to be stored someplace else. I "think" that the living room is going to be getting a lot of these boxes...some of the solution boxes I plan to put on the fireplace hearth. Anyway, I have done my share of lifting and hoisting items today. I am also into deep cleaning the bathrooms...shower curtain came down today in our bathroom and I washed it in the washing machine with towels that needed to be bleached. Something of interest: Did you realize that he no-splash bleach isn't the strength of regular bleach and that it isn't strong enough to disinfect? Something that I have read...been trying to check it out and make sure that it is true...have found it stated like that in several places. I do know that I felt like that type of bleach didn't work as well as the old-fashioned bleach that I used to get...but just figured that it was just me thinking that...but perhaps there was a reason that I felt that way. If anyone else knows anything about this let me know! The other day when I was trying to buy bleach I could only find the low-splash so I skipped getting it. I am going to have to venture out and get some as I am about out of my last bottle of old-fashioned bleach. Tomorrow we will head back for more dialysis training. Oh, boy! I will be glad to not have to go...but I also have to gulp that when we don't have to go we will be on our own! I say that, but there is a 24-hour help-line that we can call if we have problems. Be safe! Be well! Be cautious!

Wednesday, August 26, 2020

Smoother Sailing Today

Getting closer to the culmination of our training. Everything went pretty well today...no malfunctions. It's just a long time to sit there! I think that we will be very happy to be doing them at home over night...at least I hope that we will be happy! We were at the dialysis center from 9am to a little after 2pm. We came home and Woody sat for a few minutes and the had to turn right around and head to his TN Oncology appointment. It looks like he won't be going here for injections anymore since the dialysis space ter has taken over his anemia shots. They will give him vitamin B-12 in another form. Maybe that will be one less medical appointment for us to keep up with. Tomorrow the dialysis machine and the cart that it sits on is scheduled to be delivered. Friday a partial shipment of supplies is to arrive and then Tuesday the BIG ORDER is to arrive. I had to call and confirm our address and phone number to the folk who are sending the BIG shipment. The lady told me that the person who is delivering it will also come in and help me put it away! All good and well...but do I really know where it is ALL going to go?!?! Tomorrow I will wait for the delivery and keep cleaning and getting ready for Monday's first day of dialysis at home. Trying to imagine in my head what our schedule will be in our new normal! One thing I am glad is that the dialysis will take place during the night...that is IF Woody can sleep during it! It will be nice to have the daytime hours be as normal as possible! That's what I see as a big plus in this type of dialysis...doing it at home and doing it while we sleep. We'll see if it is still appealing once we are doing it daily! Be safe! Be well! Be cautious!

Tuesday, August 25, 2020

Patient Line Block!

We,re moving right along with the dialysis training...closing in on the end of the time at the dialysis center and getting ready to start the home dialysis treatments. Supplies will start being delivered on Thursday...the dialysis machine and the cart that it sits on. Then Friday we are to get a partial shipment. This coming Tuesday is the day for the BIG shipment. Monday is the last day for training at the center. We will be there for the morning. Then our nurse will come by the house to help us get set up. I think that his first complete treatment will be Monday night if things go as planned. I got everything set up fairly easily this morning. And things went well until we got a message that the patient line was blocked. I knew to check for kinks, etc. it took both the nurse and myself to finally get it going again. And, things went along fine until the final drain. I realized that it was progressing just too slowly. You can track the amount of fluid drained on the screen. Usually at the first it is very free flowing and comes out quickly...not this time...it went v e r y s l o w l y until it, again, gave the warning that the patient line was blocked. I worked for a while looking for kinks...after the third or forth warning, I called in the nurse. We had Woody stand up and wiggle around a bit, but to no avail. We finally decided that it was time to abandon the machine and hook up for a manual drain. We did get one notice about the cartridge and that made the nurse decide that it was a problem with the cartridge and not Woody's line or the machine. We got the manual drain going and it drained quickly. Once that got going the nurse opened up the machine to find the cartridge leaking all over the place. I'm glad that this happened to me the first time while we were there so I had some backup to figure out what to do. I had just asked the nurse this morning what to do if electricity went out in middle of treatment and his answer was switch to manual dialysis. So I knew the direction to go. The nurse said that he tries to make the machine malfunction one time during training...he just didn't have to make it do it this time. Machine malfunctioned all on its own! I guess I have passed. I signed off on a whole lot of things today as had the nurse. Looks like we just have tomorrow, Friday, and Monday left to train at the center. Today is our first grandchild's birthday. Happy 27th birthday to Erin Elizabeth! My how time flies!!! It seems strange to realize that we have been grandparents for over a quarter of a century!!! Be safe! Be well! Be cautious!

Monday, August 24, 2020

First Day on Dialysis Machine

For a change I can post a photo that I took on the day I took it! I wonder how long Blogger will allow me to use the old way! Aw you. This lets you see Woody all hooked up and the type of machine that will soon reside at our house...along with 60 boxes of supplies! The machine makes it much easier to do than the manual dialysis that we did all last week. Today the nurse walked us through and we watched. Tomorrow I will "get" to do the connecting and disconnecting, etc. with the help of instructions on the machine's screen and our nurse talking me through the process. With the machine a person only has things to do prior to the dialysis and then connecting. The machine does all the draining and filling and keeping track of amounts, times, etc. pretty nifty. Then after the machine is finished with the last drain a person takes over again. Woody still hasn't perked up yet...but he also hasn't received a full dialysis yet either. He won't have a full dialysis until we are doing it at home due to the length of time that it takes. The way this is supposed to work is that we will hook Woody up prior to him going to bed and then he can sleep through the night and in the morning I will do the final steps. I do hope that he will be able to sleep during it. The machine worked very well today...it pulled off all the fluid that it put in plus some...good for the first time. I also finished reading the manual and answering a ton of questions. I was given the manual to bring home...it has a wealth of information in it...it just needs a good index...hard to find things...maybe I will note the pages of info that I think that I might need most. But that can wait...a bit...my brain is on overload! This is like a crash course on tons of important information that you might need to know! And, at the moment a lot of that info is just spinning around in my head. Hopefully it will settle down and be filed in correct places in my brain! It's pretty intense information! Today Woody got an anemia shot at the dialysis center. That will be done there now. I came home to check with TN Oncology to see if he still will go there for his B-12 shot, etc. They said "yes" so I had to reschedule his appointment as it conflicted with our dialysis training time. He will now go after he finishes dialysis on Wednesday. I had to cancel/postpone his dermatology appointment that was for tomorrow...again...it conflicted with our dialysis training time. We will wait to reschedule that till we are settled into a dialysis schedule at home and also, hopefully after he is feeling a bit stronger. Lots of juggling going on in our household...wrong Dorrell household for juggling! The nurse did order all our supplies this morning. The suppliers will let us know in a couple of days when we can expect delivery. I can hardly wait...ha! Today I pulled out our old kitchen wastebasket that I was using in the laundry room. I'm going to get it cleaned up as we have to have a large one to throw away supplies. Still lots to do to get ready. But by the time I get home from the training, all I want to do is sit in my chair and nap! I am so glad that this daily trip to the dialysis center will soon be behind us and we can stay home most of the time once again. Be safe! Be well! Be cautious! An aside: I am so glad to be able to post photos once again!

Sunday, August 23, 2020

Sunday Extra

Sunday is usually my day of rest from the blog, but felt like blogging just because...just because I can once again post photos...so found one from one of our barn trips of a church. We "went" to church today via Facebook Live...just like we have been doing since March. Our church continues to have drive-in church or livestream or Facebook live. We continue to shelter at home for most things and at the moment it is very nice that we are able to "go to" church this way. As Woody doesn't need to be with lots of others nor does he really feel like going. Going anywhere takes so much effort on his part that it wears him out. After church, we had lunch. Later in the afternoon I decided that it was time to do the last rearranging on the shelves in the back of the coat closet in the family room. I rearranged a bit in the toy closet that is under the stairs making room for the games on the shelves in there. That freed up a wide shelf at the back of the family room closet...should hold at least a few of those 60 boxes that will be arriving sometime in the near future! I also put some things up on the very top shelf in that closet as the top shelf wouldn't be very easy to get dialysis supplies down from. I think that comes close to clearing three shelves in there. Should help some! After that I came upstairs to rest and read for a while...did more resting than reading! Now I guess I will go down and see if Woody is wanting anything for supper. Be safe! Be well! Be cautious!

Saturday, August 22, 2020

Look What I Found!

I noticed the other day that there was a place to tap that would revert to "legacy" form of blog. There is a notice that says that before long they will move everyone to the new form...but till then...I will revert! I am a happier camper! Of course this one still isn't the original as I can not put in paragraphs. Woody hasn't felt the greatest today. He got up and felt nauseated and then it was a long time till he felt like eating. Eventually he felt better and he has tried the salad that I made him yesterday. He asked me to make it. But he said that it didn't taste quite as good as he thought it would. But he still seemed to enjoy it at least some! Probably the favorite thing that he has eaten today was a bowl of ice cream. He even got up enough energy to dip his own...probably because he didn't think that I gave him enough!?! I have continued to work on getting things ready for our big 60 box shipment. I am slowly but surely clearing the shelves that are in the back of the closet in the family room. I also cleared out a drawer in the downstairs bathroom. I had stored stenciling supplies in there...one of my craft interests of days gone by. I wasn't ready to get rid of those supplies so I cleared out a drawer upstairs that also had craft supplies in it. I threw a lot away from both drawers...what I kept all fit in one drawer. I still can't wrap my brain around receiving 60 boxes! The nurse did tell me that this will be the biggest shipment...that after this one it will just be things that we run out of. This shipment will include things that we will only need one of during his entire at home dialysis. It will include things like an IV pole, the machine that will do his dialysis over night, supplies...like gauze and tape and gloves and...you get the picture. I guess we should find out on Monday what day this shipment will arrive, as the nurse plans to order our supplies on Monday. I cleaned off one of the desks in the family room and got it ready for current supplies...those that we need to clean where the tubing goes into his abdomen. I did that nursing duty for the first time last night and will do it each evening until they declare him healed...which they said takes 4 to 6 weeks. I spent quite a bit of time today messaging Woody's doctor's at Vanderbilt and his personal care physician to let them know that he has started on peritoneal dialysis. I also told the pharmacist when I picked up one of Woody's prescriptions today. The dialysis manual that I am reading during our training said to do those things. Our pharmacist said that she was going to have to learn more about peretoneal dialysis so she would what meds were okay and what weren't. She was a little concerned about the antibiotic that I picked up today. That is the prescription that he was given due to his bad infection early last year. The infection that makes him have to take this antibiotic for the rest of his life. We will let the kidney team and his infectious disease doctor decide if this one is okay to continue on. The infectious disease doctor is one of the doctors that I messaged today. Be safe! Be well! Be cautious!

Friday, August 21, 2020

Our first week of dialysis training is complete! And, I think that today went very well. I suggested to the nurse first thing that I do everything the way we did yesterday, but this time I wanted to read the instructions myself as I went along. And, that worked so much better than me following what he told me to do. I did discover something that there was another sheet of directions to finish off the manual dialysis that I hadn't seen before...26 more steps! He had given me instructions to read but not those and so when he started telling me to do those things yesterday they were totally foreign to me since I hadn't seen them before. At least it gave me a reason in my mind as to why I was so confused at the end of the day yesterday. The nurse shortened the day for us today because it is Friday and he only had us use one bag of the dialysis solution and we were home before noon. Monday we will start learning about the machine that he will be using at home. What we have been doing, manual dialysis, is only used in emergency situations...no electricity or malfunction of the machine. We have to know how to do this "just in case." Woody got a new throw from the dialysis company. He was very happy to receive that as he is always cold! It is bright lime green and a very nice size. I am attacking "his room" (the family room) this weekend...everything needs to be super clean in the area that the dialysis takes place. So I have been attacking small areas at a time. Today got a desk cleaned off and dusted well and wiped off with disinfectant wipes so I can place some supplies on it. First supplies we were given today...those I need to change the bandage and clean around the area that the tube enters his abdomen. This job has been turned over to me..the non nurse who has been put on nurse duty! I will "get" to do that for the first time tonight. I have been shown how. I guess it is time for me to go check on my patient and see if he is hungry for a little supper. Be safe! Be well! Be cautious!

Wednesday, August 19, 2020

Squirrel #50 is down in the records! And, Elijah has earned $50 trapping squirrels this summer! The 50th was trapped while Woody and I went through our 2nd day of dialysis training. This time I did al the steps with the nurse reading them to me. Still very confusing and I went away from the center with my brain muddled! I only made one mistake that took some correcting on the nurse's part. I turned the dial too far...guess that mistake will make me be sure not to do it again...part of training...I guess! Woody continues to lose weight...which is partly water weight but not all...he is looking pretty skinny! I think that he is less nauseated the last two days. But he is still really tired and weak...walking any distance is very difficult for him. We have the day off from dialysis training tomorrow...probably just long enough for me to totally forget what I learned today. I left the center with my brain muddled. Like most things, I'm sure that eventually it will make sense! We watched two videos and started reading the manual that has questions to answer after each section. A lot is common sense but ther are some questions that don't make sense and I don't remember reading about. It's like being back in school and the teacher throws in trick questions! The nurse said that we didn't have to read the first part of the manual and then when the sections didn't deal with the questions being asked I looked at first part and that was where the answers were. So I read through that too. So, I guess it is "school back in session" for us! I mainly rad the manual and then I read the questions outloud and we both answered them. Woody is getting the hang of it. But really I'm not sure that he could do all this by himself. He just isn't mobile enough currently to gather supplies and go back and forth to wash his hands, etc. Well we are both putting our feet up the rest of the evening! Be safe! Be well! Be cautious!

Wednesday, August 12, 2020

Title blogging isn't all that great! If I "happen" to make a mistake or the iPad happens to change a spelling on me, there isn't anyway to go back and correct except to delete most of what I have already written. So...giving you the reason that mistakes aren't corrected! I started out the day in the kitchen...making Sour Dough English muffins. I did half the work last night and then finished them up this morning. Quite good! I froze most of them. Only left out a couple as temptations! Before I got them finished, we received s call from the kidney clinic telling us that Dr. O, Woody's nephrologist, wants Woody to start dialysis this coming Tuesday. So the start day is now on the calendar. I'm wondering how long after starting dialysis till he is feeling some better than he is currently. While the English muffins were rising I roasted a pan ful of beautiful red peppers that a friend gave us. So I have lots of peppers in the freezer all peeled and deseeded and ready to be made into Woody's "catsup" or in some other recipe. The kitchen has looked like a tornado went through for most of the day! I also got out the blender and finely chopped the basil that I have had drying for several days. Then I attacked the kitchen and it looks much better! Today is Nathan's and Kathy's 20th anniversary. Happy Anniversary! Nathan was wise and married in a year that every year after it tells him how many years they have been married! Smart thinking!? Do you think he planned it that way? Doubt it very much! As I get ready to end tonight's blog with my "be" sayings, I think about Melany and many others who are heading back to school tomorrow! Definitely: Be safe! Be well! Be cautious!